Vaccinations...

Well, here is the latest update! Yesterday at PT, Mia's therapist said that if she continues with the way she has been going for several consecutive weeks (with no flare-ups) that we will be able to change her PT from twice a week to once a week! She has been very impressed with the way Mia is progressing. Last Thursday she was not limping during her session and she did all great on all of her exercises. She really enjoys playing with the putty and the beans and doing the balance beam. She is really doing great with the stretches and the massage therapy sessions, too. She sits so still as the therapist works on her joints. I think she is starting to understand that they are there to help her. She still has some inflammation on her knee, here elbow, and her ankle, but overall we have seen HUGE improvements from the diet change, the PT and OT, the meds, and PRAYER!

Today was Mia's two-year check-up at the doctor's. We spoke with him about opting out for the flu shot and he agreed. Also, we asked him what vaccinations we could wait on for her given the current condition of her immune system and he said that she isn't due for any vaccinations until she is ready for kindergarten. PHEW! I was concerned the vaccinations might cause a flare-up and I want Mia to have a good week because it is her second birthday on Saturday! I really appreciate Mia's pediatrician. Every time I leave his office he makes me feel better as a parent and he is always very supportive of what we are doing with Mia. He told us that if Mia was his child he would be doing the exact same thing right now. He wants us to continue with her diet change for at least six months and then we can start adding things back into her diet to see what is causing the inflammation and pain. He said there is no harm in what we are doing and that everyone could benefit from being on a diet like what Mia is on. While he was happy with what we are doing with Mia's diet, he also wants her to start seeing a pediatric nutritionist after the new year to see if there is anything else that would be beneficial for her right now.

Brace update! Mia has been doing GREAT with the leg brace at night. The first two nights she cried before she went to bed about wearing it, but she slept through the night with it on just fine. Now, we can put it on her and she isn't bothered by it one bit! She never wakes up in the middle of the night from it and it really seems to be helping her. I have noticed that her knee is quite hot in the morning and there is a bit more fluid around the knee, but that is probably because it has been straight all night long and her body is adjusting to that.

I am VERY proud of my Mia! Every day she continues to amaze me! With all the doctor's appointments and therapy sessions, she never has a fit and handles everything just fine! God blessed Mia with the bubbly personality that she has - she is always so smiley and so friendly at her appointments. Her latest thing is to "chat it up" with the elderly people in the waiting room at her PT sessions, which they just love! Jay and I are truly blessed to be her parents!