Mia received ANOTHER good report on Thursday while at PT. Her Thursday therapist, Kathy, measured Mia's leg and arm again and said her arm is straight and her leg is almost straight. Now we just need that swelling to go down in several of her joints and she will be they way God created her to be...a normal, healthy little girl without any complications or hindrances in her body. She is definitely a MUCH happier little girl!
So much has changed in our lives over the past two months. Sure, being parents of two isn't an easy feat, but it is nothing compared to watching your daughter struggle over the last several months and feeling so completely helpless. I was just saying to my husband tonight, as we look through our October pictures of Mia the week before she was diagnosed, how we had no clue what we were in for. Even the day of her appointment...I was so frazzled just getting her into Boston for the appointment that I think I sat there frozen for what seemed like an eternity as the doctor told us what was going on with Mia's body and how her immune system is attacking itself and causing great pain for Mia. That had to be one of the saddest days of my life. No one likes to hear bad news, but especially bad news about your child. It was (and still is) a very hard thing to get through. There are days where I feel strong and days where I feel totally winded, like a huge wave keeps knocking me over and over and over.
Tonight at dinner, as I made yet another gluten-free, dairy-free, eggless meal for my daughter, my husband and I talked about how much it just stinks that everything happened to Mia right around the age where she would have started enjoying a ton of fun, toddler-type meals (mac and cheese, spaghetti, birthday cake, Christmas cookies, etc.). And while a small wave started to build up to come crashing over me, I quickly repressed it by saying, "But she WILL get to enjoy those things. Maybe not right now, but someday she will!" I can't WAIT for the day when I can take Mia to McDonald's for a happy meal! :)
Things to pray for: Mia has an MRI scheduled for 12/19 at NEMC for her ankle. Please pray for her (and us) that day that everything goes smoothly, that the doctors have wisdom, and for peace for Mia as she will be put to sleep for the procedure.
Thank you to all of our friends and family who have emailed or called. We greatly appreciate the words of encouragement, support and prayers. There is nothing like family and we love you all very much!
Friday, December 07, 2007
Another good report!
Posted by Dana at 1:18 PM
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Read the last 2 Dana... and yes, I've said many-a-time "if you do so and so, Daddy will get you a special treat"... Sarah, Robin, Larissa and I are praying for Mia, you and Jay.
Love you
Brian and Robin
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