Thursday, April 18, 2013

Uveitis Check-up & Rheum Appt

At the beginning of the week, both Mia and JJ had uveitis check-ups at MERSI. JJ still goes every six months and Mia goes every three months. Both kids got great reports - eyes are CLEAR!!

Today, Mia had a rheumatologist check-up with Dr. Miller. She just had labs done a few weeks ago and those came back fine. We have weaned her down from 12mls of Indocin to 6mls (she just takes it in the morning now). Dr. Miller had hoped by this appointment we'd be able to completely eliminate the Indocin altogether and Mia would just be on the weekly injections of Methotrexate. However, during the physical exam, Dr. Miller noticed Mia's elbows have fluid on them and are swollen - the right more than the left. The right elbow is the one that she had drained when she was three years old. Her elbows don't bother her, but when Mia tries to touch her hands to her shoulders there is pain. Dr. Miller said they weren't bad enough to need to have them drained and injected - just something to keep an eye on.

With that said, Dr. Miller told us to stick with the current dose of Indocin and not change anything just yet. She was concerned if we took her off of it, she may have a really bad flare and wanted her to have a fun and enjoyable summer. Other than the elbows, the rest of her joints look great! No fluid on the knees, toes look good, ankles, fingers, hips, spine, jaw, neck, and wrists all fine!

So, after Mia showed Dr. Miller how she can do center and side splits and then performed her ballet routine, which Dr. Miller was thoroughly impressed with (and makes notes in Mia's file of what she is able to do), she told us she would see us in three months from now.

All in all, we are very happy and thank God for Mia's good report today and for clear eyes for our kids this week!

Prayer request - We will be heading back to Tufts in Boston tomorrow because our youngest child (2yo) will be having a tonsillectomy and adenoidectomy. We have gone through this procedure with our two oldest kids, so we are "old pros" at this point! He will be admitted afterwards (standard procedure for kids 3yo and under). Please keep him in your prayers as he is still fighting off a bad case of bronchitis (which the doctor believes was caused by the tonsils). We are believing all will go well tomorrow with the procedure and he will recover quickly without any complications. Thank you!

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