Thursday, January 10, 2013

Heading In The Right Direction!

These are my favorite kind of appointments! The kind when you see results. The kind where it is confirmed you made the right decision for your child. The kind where the doctor gives your child "two thumbs up!"

Dr. Miller was very happy with the progress Mia is making right now. She said all of her joints look great - quiet and calm! She did notice her hair is starting to thin, but reassured me it will grow back. BUT, while she had a rough start the first few weeks adjusting on methotrexate, she feels she is "starting to make the climb upward."

With that said, she thinks it is time to start weaning Mia off Indocin in the hopes we can get her down from two meds to only one - methotrexate. Mia has been on Indocin for over 2.5 years and since she was diagnosed at 22 months old, she has never not been on some type of NSAID.

This is a big deal. And, we are pretty happy!

While everyone is healthy in the house, she wants us to start skipping a dose of Indocin every third night for three weeks. If she does okay and doesn't complain of pain, then we can start to eliminate her night time dose altogether and just stick with the morning dose until we see her six weeks from now. Yes! Steps in the right direction!

Her blood work came back and she said everything looks great! However, there are still increased white blood cells in her urine. This is the second time she has told us this - the last urinalysis showed the same thing, but this time it is elevated even more. So, she wants us to repeat the urine test (for the third time) and get a culture done. Then she will call us with the results. She said, it could be the Indocin causing the increased white blood cells, but she is not sure.

After Dr. Miller did her routine physical exam with Mia, checking her range of motion and looking over her joints and taking measurements of the joints, she gave Mia "two thumbs up!" Mia was so excited that she decided to show Dr. Miller how she can do the splits now. It was pretty awesome!

Today, we are very thankful to God that we are heading in the right direction and seeing improvement in our daughter's body. Today, I am one happy Mom with one happy (and flexible!!) daughter!

“Your body will glow with health, your very bones will vibrate with life!”
Proverbs 3:8 (Msg.)

2 comments! Leave yours here!:

Amy said...

Wonderful news! We had a similar good appointent a few weeks ago and I had the same feeling.

Nicole said...

I wanted to write you an email but don't see a way to reach you besides leaving a comment. I would appreciate you adding my blog to your JRA blog list and would like to subscribe to yours to keep updated. I have found many blogs from other JRA families, but unfortunately, most have very few regular postings. :) Nicole, Mom to Lucianna, 3 1/2, Pauciarticular with Uveitis. www.lovelucianna.blogspot.com