In His Hands

Not one of their bones will ever be broken. - Psalms 34:20

Where shall I begin?

Bear with me as I "dump" and get all of this crazy day out of my head.

We started off on the 6th floor at Tufts Medical Center today with an appointment for JJ with the ENT to check his tonsils (the same doctor who took out Mia's tonsils last summer). After examining JJ, he said he has what they like to call "kissing tonsils"....they are so close they are almost touching. And, he tells me, they need to come out in the next 1-2 weeks.

He then took at look at Mia and examined her inflamed collarbone, only to confirm it is definitely not inflamed lymph nodes, but an inflamed left collarbone joint, as Mia's physical therapist suspected, and we need to see the rheumatologist and have them do an ultrasound of that area.

So, off we go.....to the fourth floor. To Rheumatology Land.

And, yes, by this point we are all ready to head home.

Jay waits in the waiting room with our two boys while I take our sweet girly in to be examined by both Dr. Davis and Dr. Miller. 

(drawing a picture of herself and me)

They examine her joints and don't bother requesting a ultrasound or x-ray of her right knee because it is clear it is very large and very swollen. 

What they are fascinated with is her collarbone, specifically the left side.

Apparently, Mia is the first to have an inflamed collarbone joint (left side). The joint has fluid all around it and it is very squishy when they press on it. And, it hurts when they press on it. The knee hurts, too. She points to a 10 on the "pain level chart." And then, Dr. Davis examines her eyes and says he sees a "thickening and density" in her left eye (but, I am not too concerned because he is not the first doctor to say this in the past five years and then we have gotten it checked with the uveitis specialist and her eyes have been "all clear.")

Then, I suggest they do an ultrasound of the collarbone joint (which they both think is a "brilliant idea." Holy cow. Seriously? You did not consider this???). And, they send Mia down to ultrasound. 

The Radiology Department is closed by this point, but takes Mia because they find it "all too fascinating" that she has a joint they've never seen arthritis in before. 

(Excuse me if Mommy is not as "excited" as all of you are. Honestly, I find your excitement to be rather disturbing.)

Jay goes in with Mia and I wait with the boys. And, in my head a say a huge "God bless, my husband" for stepping in and switching for  a bit. Jay and I are a TEAM. Hands down. We both step in when the other needs a break. Seriously....we've been married almost 10 years now and are in such a flow when it comes to all this rheumatology-mumbojumbo. I am blessed! My kids are blessed to have such a wonderful father. :)

And, by this point, I have busted out the bag of jelly beans to hold off my two hungry boys.

After ultrasound, Mia is sent to x-ray. And, I get out more jellybeans to feed the savages. And then, she goes back into x-ray, again, for more examination.

Ultrasound and x-ray results: They discover there is no erosion or damage done to the left collarbone joint. However, there is a good amount of inflammation and fluid on that joint. 

And, we all know where this is going.....

They want both of my kids on methotrexate.

Surprise. Surprise.

But, there are several things to be done first:

Blood work for Mia. And, they are waiting to see what happens to her knee. If it does not go down before next Friday, then it will need to be drained and injected.

In the meantime, she can go to dance tomorrow and has been instructed to "self-limit" herself if she has pain. So, we will go to dance tomorrow...and I will bring the ice pack along with me, icing her knee before and afterwards.

And, JJ has to have his tonsils out.....

So, we will take each day as it comes. There is a chance that next Friday my husband will be with our daughter at Tufts having she is having her knee drained and injected while I am with our son at Tufts as he has his tonsils out. 

But, that is next week. And, this is tonight. And, this mommy is ready for BED!

And....

God still loves my babies more than I ever could. And, they are in HIS hands. Our entire family is in His hands. 

It's a GOOD place to be! :)